Parkinson’s Care at Home: How to Support Your Loved One

Parkinson’s Disease (PD) is a progressive neurodegenerative disorder that affects movement, cognition, and emotional well-being. It’s characterized by motor symptoms—such as tremors, rigidity, and slowness of movement—as well as non-motor symptoms like depression, sleep disturbances, and cognitive decline. 

However, beyond the medical definitions, Parkinson’s is a deeply personal journey that affects not only the individual diagnosed but also their loved ones.

If you’re caring for someone with Parkinson’s, you know that medical treatment alone isn’t enough. Compassion, dignity, and emotional support are just as crucial in sustaining a fulfilling life for your loved one. In this guide, the experts at ComForCare talk about how person-centered care respects individual preferences and enhances quality of life beyond symptom management alone.

Understanding Parkinson’s Symptoms 

Person-centered care is all about seeing the individual who is experiencing the symptoms—not focusing solely on the symptoms themselves. That said, understanding the challenges a person with this disease faces can help you make informed decisions about the right Parkinson’s care plan.

Motor Symptoms

The hallmark motor symptoms of Parkinson’s disease impact movement and coordination. 

• Tremors: Involuntary shaking, often starting in the hands or fingers
• Bradykinesia: Slowed movement, making simple tasks difficult
• Muscle Rigidity: Stiffness in the limbs and trunk, causing discomfort and difficulty with movement
• Postural Instability: Balance issues that increase the risk of falls
• Freezing Episodes: Sudden, temporary inability to move, especially when walking

Non-Motor Symptoms

While often overlooked, non-motor symptoms significantly impact daily life and emotional well-being:

• Cognitive Changes: Memory loss, difficulty concentrating, and executive function impairments are common.
• Depression and Anxiety: Mood disorders are common and can be exacerbated by the challenges of living with PD.
• Sleep Disturbances: Insomnia, vivid dreams, and restless legs syndrome frequently accompany PD.
• Autonomic Dysfunction: Issues such as constipation, urinary problems, and low blood pressure can have a major impact on a person’s quality of life.
• Speech and Swallowing Difficulties: These issues affect communication and nutrition, both vital aspects of a vibrant life.

Disease Progression

Parkinson’s is a progressive disease, meaning symptoms worsen over time. The rate of progression varies from person to person, but understanding the different stages can help caregivers anticipate challenges:

• Early Stage: Mild symptoms that may not interfere significantly with daily activities.
• Mid Stage: Increased difficulty with movement, balance, and daily tasks.
• Advanced Stage: Severe disability, requiring full-time assistance with mobility and self-care.

Principles of Person-Centered Care

Person-centered care goes beyond the traditional patient-centered model, which focuses primarily on medical treatment and clinician-led decision-making. In essence, while it recognizes the importance of medical intervention, it also prioritizes the human element of care.

While patient-centered care aims for health maximization, person-centered care prioritizes a meaningful life despite limitations. It fosters mutual respect, recognizing the individual as more than a patient but as a person with values, preferences, and unique experiences.

Key Practices

• Involve the person with PD in decision-making: Respect autonomy by including them in treatment plans, daily routines, and lifestyle choices.
• Address emotional and social needs: Acknowledge the person’s fears, frustrations, and mental health concerns. Encourage participation in social activities and hobbies by engaging in them together.
• Foster open communication: Engage in meaningful conversations to understand personal values, preferences, and care goals.

Practical Strategies That In-Home Caregivers Can Help With

Creating a Supportive Home Environment

Creating a home environment that supports independence and safety is essential for individuals with Parkinson’s. Simple modifications can make a significant difference in daily life, reducing risks and fostering confidence in movement. By proactively adapting the living space, caregivers can help their loved ones navigate their home more easily while maintaining a sense of autonomy.

• Safety Modifications: Install grab bars in bathrooms, remove tripping hazards like loose rugs, and improve lighting.
• Simplify Tasks: Use adaptive tools such as weighted utensils, button hooks, and easy-to-grip cups to facilitate self-care.

Daily Care Management

Caring for someone with Parkinson’s requires a structured approach to daily tasks, as routine and consistency are known to help reduce stress and frustration. Establishing predictable daily schedules can make responsibilities more manageable and empower people with PD to participate in their daily activities as much as possible. 

• Medication Management: Use pill organizers or mobile apps to track medication schedules.
• Exercise Routines: Encourage tailored exercises like physical therapy, yoga, or tai chi to enhance mobility and reduce stiffness.
• Nutrition: Assist with meal preparation, ensuring foods are easy to chew and swallow. Thickened liquids can help prevent choking.

Communication Tips

As Parkinson’s progresses, communication may become increasingly difficult, both for the person with the disease and their caregivers. Speech may become softer, slower, or more monotone, making it harder to understand. Facial expressions and body language may also change, which can impact nonverbal communication.

Additionally, cognitive challenges can make it challenging for the individual to process and respond to conversations as quickly as before. However, with patience, understanding, and the right strategies, you can still maintain meaningful communication.

• Face-to-Face Interaction: Maintain eye contact and give the person time to process and respond.
• Use Simple Language: Short sentences and clear enunciation can make conversations easier.
• Yes/No Questions: Simplify communication in advanced stages by using closed-ended questions or written prompts.

Empowerment Through In-Home Parkinson’s Care

Person-centered care empowers both individuals with Parkinson’s disease and their caregivers. By prioritizing dignity, emotional well-being, and meaningful connections, caregivers can enhance the quality of life for their loved ones. Of course, providing this level of care as a family caregiver can be incredibly difficult—especially for those who have their own careers, families, and daily stresses to consider.

If you’re looking for compassionate, in-home care that truly understands the unique challenges of Parkinson’s, ComForCare is here to help. Our holistic support system ensures that both you and your loved one receive the care and guidance needed to navigate this journey together. Find the right caregiver today and bring peace of mind to your family.

Find Your Ideal Caregiver Today

ComForCare is a nationally acclaimed home care agency that provides individualized support to seniors in each community we’re lucky enough to serve. Find your nearest ComForCare location to get started, or call us to ask any questions you may have about in-home care

(800) 886-4044   Find a Caregiver Near You